Resurse online pentru boli rare
National Institutes of Health, the Office of rare Diseases, USA
- Link: http://rarediseases.info.nih.gov/
- The Office of Rare Diseases (ORD) at the National Institutes of Health (NIH) coordinates research and information on rare diseases at the NIH and for the rare diseases community. The ORD Web site provides information for patients and their families with rare diseases and about NIH- and ORD-sponsored biomedical research and scientific conferences
National Organization for Rare Disorders
- Link: http://www.rarediseases.org/
- NORD is a unique federation of individuals and organizations working together to build a better world for people affected by rare diseases.
Health on the Net Foundation (HON)
- Link: http://www.hon.ch/HONselect/RareDiseases/
- ORPHANET is a database dedicated to information on rare diseases and orphan drugs
About.com ::: Rare diseases
- Link: http://rarediseases.about.com/
- Information about many types of rare diseases and disorders, including causes, symptoms, diagnosis and treatment, including orphan drugs
Medline plus ::: Rare diseases
European Organisation for Rare diseases ::: Eurordis
